Australien
The Association of Genetic Support of Australasia
66 Albion Street
NSW 2010 Surry Hills
Phone: +61 2 9211 1462
[email protected]
X&Y Chromosome Variations Support Australia
Ms. Monica Bray and Ms.Rebecca Waters
20 Lamb Street, Lilyfield
NSW 2040 Sydney
Phone: 61 2 9818 8981
Email: [email protected] or [email protected]
Dänemark
Triple-X Foreningen i Danmark
Ms. Anelli Frandsen
[email protected]
http://www.triple-x.dk
Frankreich
Valentin Association de Porteurs d’Anomalies Chromosomiques
52 La Butte Eglantine
95610 Eragny
France
Tel: 33 (0)1 30 37 90 97
[email protected]
http://www.valentin-apac.org
Deutschland
LEONA – Familienselbsthilfe bei seltenen Chromosomenveränderungen e.V.
Kreihnbrink 31, 30900 Wedemark
Tel. +49 (0) 5130 37 49 92
[email protected]
http://www.leona-ev.de
Triplo-X-Kontaktgruppe
Wegenerstr. 15, 89231 Neu-Ulm
Tel: +49-(0)731-98490 16
[email protected]
https://www.triplo-x.de/
Griechenland
To Mellon-Association of people with genetic disorders
Dr. Helen Fryssira
Medical genetics, University of Athens, Aghia Sophia Children’s hospital
Makrinitsas 16
115 22 Athens
Phone: 30 21 06420821
[email protected]
Ms. Irene Simeonidou
Kalamos Galissa
84100 Syros, Cycladhes
Greece
Phone: +30 6977660860 & +30 2281062198
[email protected]
Großbritannien
Rare Chromosome Disorder Support Group
G1, The Stables, Station Road West, Oxted, Surrey RH8 9EE, United Kingdom
Tel. +44(0)1883 723356
[email protected]
http://www.rarechromo.org
Triple-X Family Network Support Group
Helen Clements
32 Francemary Road
London SE4 1JS UK
Phone: 44 (0)208 690 9445
[email protected]
http://triplexsupportgroup.homestead.com
https://triplexsyndromesupport.co.uk/
Irland
Inclusion Ireland
Ms. Finula Garrahy
Unit C2, The Steelworks, Foley Street,
Dublin 1 DUBLIN
Phone: +353 (0)1 8559891
[email protected]
Italien
Associazione Sindromi Cromosomiche e Genetiche Clinica Pediatrica
Università di Ancona
Ms. Raffaella Formato Urbinati
Via F. Corridoni 11
60123 Ancona
Phone: 39 071 33633
[email protected]
Niederlande
Contactgroep Triple X Syndroom
Thea van de Velde en Ida Bakker
p/a Langsteek 15
5641 NG Eindhoven
The Netherlands
[email protected]
http://www.triple-x-syndroom.nl
Norwegen
Frambu-Senter for sjeldne funksjonshemninger
Kontaktperson for trippel X:
Eva Elisabeth Næss (fagkonsulent/fysioterapeut)
Telefon: 64 85 60 40
[email protected]
http://www.frambu.no
Österreich
Trisomie-X-Kontaktgruppe Österreich
Pfarrhofgutweg 8
5400 Hallein
[email protected]
http://www.klinefelter.at/trisomie_x
Polen
Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi
Ms. Hanna Maciejewska
Os Lecha 4
60-293 Poznan
Phone: 0 607 222 72
[email protected]
Rumänien
Organizatia trebuie- Bacau
Ms. Didina Obreja
Str. Nicu Enea, 42A-271
600191
Bacau
Phone: 00 40 234 544 565
[email protected]
Schweden
Die Mutter eines jungen Triplo X-Mädchens, das 2008 die Diagnose
erhalten hat, hat ein Blog angefangen. Sie hat versucht, Informationen
zu übersetzen und Ihre Gedanken zu den Thema einzubringen. Leider hört
das Blog im Juni 2009 auf.
http://trippelx.wordpress.com
Facebook Gruppe: https://www.facebook.com/groups/374382809416696/
Schweiz
Association Enfance et Maladies Orphelines
Ms. Bhira Meyer
2 rue du Simplon
1870 Monthey (Valais) 1
Phone: 41 (0)24 473 20 10
[email protected]
http://www.aemo.ch
USA
AXYS
PO Box 659
Paoli PA 19301
Helpline phone (Toll-Free in US): (888) 999-9428
[email protected] for personal help from trained volunteers
[email protected] for administrative questions
https://genetic.org/
Local support groups: https://genetic.org/im-adult-looking-answers/support-groups/
Genetic.org KS&A
P.O. Box 461047
Aurora, CO 80046-1047
Phone (Toll-Free): (888) 999-9428
Outside U.S. / Canada: (303) 400-9040
[email protected]
https://genetic.org/
Lokalgruppen: https://genetic.org/im-adult-looking-answers/support-groups/